A place for stories about chronic illness, disability, mental health, and neurodivergence.

texting a friend in 2021

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friend: Hey! What’s up? How’s it going?

me: Hey hey! Much of the same on my end. Managing as well as I can, but quite low functioning. How’s everything on your end?

friend: I honestly don’t understand how you do it. How are you able to keep on going with all those seizures? You’re so resilient. You’re one of the strongest people I know!

me: Appreciate you! I just try my best to keep plodding along, it’s difficult, but I’ve got over six years of experience, which helps. I’m a lot better at coping now than I was at the start when all this was new. I’ve picked up tricks and tips over time. Right now, I’m in a prolonged flare state so my body can’t handle much. Primarily resting and distracting myself from the pain through reading comics, watching tv shows and listening to podcasts/audiobooks.

friend: You know I’m your friend, and you can trust me. I’m here for you. You can call me and talk. You were always there for me through the lows of my depression, and I’m here for you too. Even if you’re having a seizure, I’m here for you. When you have one you can call me.

me: Appreciate you! Talking is difficult on most days, but I’ll try and give you a catch-up call sometime next week. Re: me being there for you, that’s what friends are for. Re: me having a seizure, I prefer to be alone and ride it out.

friend: I know you’re being strong, but you don’t have to be strong all the time. I can come visit you. Can I see it? Can I see you having a seizure?

Contributor

  • Mugabi Byenkya is an award-winning writer. In 2018, they were honored as one of fifty-six writers who has contributed to their native Uganda’s literary heritage in the fifty-six years since independence by Writivism, East Africa’s largest literary festival. Check out the rest of their work on their website, mugabibyenkya.com.