My chest aches. A deeply centered tightness. A pain in the bones.
I fight to breathe, bend or twist.
I go about my day, my left hip pulls
Like glue, pulling away from the surfaces, it’s adhering.
My left leg is on fire.
An SI joint that slips and slides and can’t stay still.
I need to go out.
I fight to get dressed.
It takes all my willpower to stay upright on my leg.
The location I’m going isn’t wheelchair accessible.
It would be so much easier if it were.
My crutches
The only solution to get me there.
My leg burns
My back feels like it’s breaking under my weight.
I just missed my bus.
Legs too weak and painful to carry me further.
I lean on my crutches.
My right knee complains,
Overcompensation takes its toll.
I got to my appointment, but it was at a cost
My leg burns even more now. I want to chop it off.
Anything to make the pain stop.
The fatigue is heavy.
And I crash for hours,
Waking up drowned in sweat but too exhausted to shower.
My body still screams.
Pain from everywhere, all demanding attention.
Pain so overwhelming with no way to relieve it.
Pain that’s with me for the rest of my life.
No way to manage,
No hope for a cure.
