A place for stories about chronic illness, disability, mental health, and neurodivergence.

The Dance

By

Biding time for the next encounter
I keep a chair at the table for Pain

It swaggers in sharply dressed
Snags the chair. Glides into view

Faceless entity piercing my visage
Let the eternal negotiations begin

Asking for respite in my sleep, ability to walk & think
Pain wagers intermittent pains at their whim

I sigh. Of course you do. Like a toddler you plead for more
I gently ask for meeting me halfway

Parenting Pain is almost a full time job
Constant pulling at my hem begging for attention

A push and pull of wants on both sides
Teeter totter of me vs you. My body the physical pendulum

Years of tedious fighting with Pain
I now tread the boundaries between

An ether of space where I find a breath, a moment of ease
Balancing this tango I never wanted

One, two, three, step. Dip. Slide.
Not letting Pain hold too tight. It not letting go

The Dance is now routine for us
We are no longer fierce opponents

We’re neighbours sharing a yard within
I cut the grass. Their’s endless creeping weeds

My seven year itch fast approaching
For now, I take the hand of Pain to the floor

There’s no winning. Only living
Pain my unexpected internal partner

Contributor

  • I’ve been a creative person since I could hold a crayon in my hand! Always scribbling, creating my own books, writing, painting and drawing. I’ve illustrated three children’s books and have pursued a career in design professionally, but after suffering chronic pain due to two car accidents, creating is now therapeutic more than anything. An outlet for rage, grief, pain, straying thoughts and visual creations. Without art I know I would be in a much darker place with my chronic pain condition. It has become a lifeboat for me on my worst days and pure joy on my best.